Are you interested in learning how to effectively tell your rare disease story? Global Genes are offering a new workshop titled RARE Storytelling. This webinar will cover storytelling in forms like writing blogs, recording podcasts, speaking about your story in person or on stage at an event and more. Your webinar presenters include representatives from organizations familiar with storytelling that will help guide you through this presentation:

• Daniel DeFabio, Dir. Community Engagement, Global Genes
• Stephanie Riordan, Dir. Patient Programs, Everylife Foundation
• Jennifer Siedman, Dir. Community Engagement, Courageous Parents Network
• Mike Portah, CEO, The Mighty  

This one hour webinar will be held on Tuesday, July 16, 2024, 12pm ET. 

Save your spot!